慢性的な健康障害をもつ子どもの主なケア提供者のもえつきと関連要因 : 子ども・家族の背景と家族の病の捉え方に焦点をあてて

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The purpose of this research is to reveal the risk factors for burnout in the primary caregiver providing homecare for the chronically ill child; and to ascertain primary related factors from the ill child's condition, the family situation, and the family's perception of illness. We surveyed, by means of a questionnaire, 119 primary caregivers of chronically ill children under age 17 who were hospital outpatients. We discovered as a result of the survey, that 10% of the primary caregivers experienced burnout, and 27% experienced warning signs of burnout. Fluctuating progress of the illness - now improving, now worsening - or worsening, or uncertainty about the progress of the illness; frequent, nearly daily trips, or 2-3 trips per week to the hospital; conditions making living a normal life difficult, especially, retarded physical development, retarded independence in daily life tasks, speech and mental retardation, and retardation in human relations were important; experiencing even one life event impacting the whole family within three months, especially injury, illness, or hospitalization of a family member, and job change or relocation, starting a new job; being obsessed by disease, especially the strong perception of " being put through the ordeal of illness" were found to be primary factors related to burnout. Primary caregivers experiencing these circumstances were at high risk for burnout, and the need for support was suggested.
神戸大学の論文

慢性的な健康障害をもつ子どもの主なケア提供者のもえつきと関連要因 : 子ども・家族の背景と家族の病の捉え方に焦点をあてて

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