<原著>遺伝性疾患患児を持つ母親の次子妊娠に対する意思決定と育児負担の検討

概要

論文の詳細を見る
The purpose of this study was to investigate the factors which influenced the decision making when the mothers, who had children with hereditary disease, have the following children, and to clarify the child-care strain to the mothers. Semi-structural interviews with informed consent were done to four mothers. The results were as follows: The decision makings were done by the following factors; (1)the severity of the disease, which was not apparent infancy of the ill child when the mother expected the following child, (2)the positive results of prenatal diagnosis, (3)the lower possibility of inheritance of the disease (4)the mother's hope that the following child may help the ill child and the other sibling, (5)the mother's confidence in bringing up the ill child. The strain in child-care was exaggerated by difficulties in the care itself and fear about the future of the ill children, lack of the feeling of achievement in child-care , persisting medical treatment, and burden of house work. The data in this study indicated that the mothers could cope with their strain through having spare time and having jobs for their own lives with the help of their husbands and family members.
福井大学の論文
2000-06-30