知的障害と肢体不自由を併せ持つ学齢障害児のQOL評価に関する研究

概要

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To assess subjective QOL (quality of life) of children with both motor and intellectual disabilities. Method: Participants (aged 6 -18 years) were 90 subjects and were interviewed personally. The questionnaire is consists of 36 questions covering the 8 domains, which were based on the QOL-26 WHO. The subjects were divided into four groups (A: children with mild motor and mild intellectual disabilities, B: children with severe motor and mild intellectual disabilities, C: children with mild motor and severe intellectual disabilities, D: children with severe motor and severe intellectual disabilities). Result: They answered by way of the language, eyes, expression such as smile, motion or tense of extremities and so on. Most of children answered that they are happy in general, their needs are satisfied, and they are content with supports given by the people around them. Total scores of group C ( 83.5±12.1: mean±SD ) and group D ( 82.7±9.0 ) were significantly lower than group A (92.0±9.0 ) and group B (90.5±9.0). As for details of each domain, in “Self-impression”, “Self-determination and Choices” and “Chances to do”, score of group D was lower than score of group A. Conclusion: These results indicate that the lack of understanding and insufficiency in preparing choices affect children' s QOL, and better supporting system is needed.
奈良教育大学教育学部附属教育実践総合センターの論文
2006-03-31