Quality of Life of Children with Chronic Neurological Diseases. QOL and Nursing Care of a Ventilator-Assisted Child at Home.
スポンサーリンク
概要
- 論文の詳細を見る
QOL is the important issue for chronically ill children. We visited a girl, 8 years old and 24 hours dependent on a ventilator. We talked to her, and observed her daily life, mainly on the following points:(1) what she is doing; and (2) how often, and what kind of care she needs at school and at home. Then we discussed the problems, QOL and nursing care.<BR>She enjoyed her school life with her many friends, and received respiratory care, sanitary care, and other care for 11 hours and 19 minutes in average per day. 93.1 % of the care was taken by her parents and volunteer care givers, so that they wanted to have nurse's care for her.<BR>Many kinds of nursing care service were necessary as soon as possible.
- 一般社団法人 日本小児神経学会の論文
一般社団法人 日本小児神経学会 | 論文
- Levetiracetamが著効したSTXBP1遺伝子変異による大田原症候群の1例
- Cyclophosphamideが著効した抗NMDA受容体抗体脳炎の8歳男児例
- 重症心身障害医療からみた小児脳死に関する私見
- 幼児期発症の難治な多発性硬化症に対しcyclophosphamideパルス療法が有効であった1例
- Duchenne型筋ジストロフィー児への病気の説明に関する調査