東京都神経難病医療ネットワークを中心とした神経難病患者の地域療養支援体制の検討

概要

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Purpose: The purpose of this study is to examine the function and practice of local medical care support system for patients and families with intractable neurological diseases in Tokyo.Methods: Self-administered questionnaire was sent to 125 designated facilitators, who support networks for intractable neurological patients and families at base hospitals, cooperation hospitals and public health centers in Tokyo. The questionnaire consisted of the expected roles and actual practices of base hospitals, cooperation hospitals, and public health centers respectively, and evaluated in four grades.Results: The answer was obtained from 101(recovery percentage, 80.8%). The actual practices of cooperation hospitals were below the level which were expected by designated facilitators in the base hospital and the public health centers. The most expected support, which enables `hospitalization', one of the roles in cooperated hospital, was "Specifi c guide for the treatment of intractable neurological diseases."Conclusion: It is necessary to re-coordinate the practical role of each facility in care support networks. Strengthening training programs at base hospitals is important to improve the practice of cooperation hospitals. It is necessary to exchange practical information at regional meetings so that the local medical care support networks work better for the patients and families of intractable neurological diseases.
国立保健医療科学院の論文