長期療養の場としてのALS罹病者と家族の住まいに関する事例的研究

概要

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This study is to consider the state of housing as a place for long term convalescent care through investigating the case of ALS patients. Following facts were obtained through the consideration of the lifestyle of 13 ALS patients and their families. 1) The principal of the home convalescence is the 10 hour nursing by the family members. The suetion of phlegm, required every 15 minutes throughout the day for using artificial respirator, adds the burden for the family members. 2) The state of living of ALS patients who reside in their own houses varies depending on the condition. The adoption of artificial respirator triggers the change in the state of living. To prepare for the home convalescence the patients, who decided to use artificial respirator, and their family members changes their lifestyle. 3) The state of living for ALS patients is strongly influenced by their ability to express their intention. In the case where no communications are possible, bedroom of the patient tends to be contained in family room since family member must determine when to absorb the phlegm.
2005-07-30