<Originals>Notification of developmental disability and feelings of stigma in the patients' families : comparative surveys in Japan and Denmark
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概要
- 論文の詳細を見る
The purpose of this study was to investigate what effects the manner of notification of developmental disability have on the notified families of patients. Also, the results of the surveys in Japan and Denmark were compared. The basic design of the surveys was a questionnaire distributed and recovered in Japan in October, 1996 and in Denmark in June, 1997. In Japan, 3,000 copies of the questionnaire were distributed, 1,841 were recovered with a recovery rate of 61.4%, and 1,837 responses were valid. In Denmark, 135 copies were distributed, 56 were recovered with a recovery rate of 41.5%, and all 56 responses were valid. The following are primary results of the questionnaire. Concerning "the manner of the person who informed the respondents of the disability", 40.7% of the Japanese respondents and 26.8% of the Danish respondents answered "very considerate", and 58.9% of the Danish respondents and 19.4% of the Japanese respondents answered "could be more considerate" or "insensitive". Concerning "the reaction of the respondents when they found out about their children's disabilities", the percentages of the negative responses of "It cannot be true", "I was at a loss", and "I felt despair" combined were 59. 1% in the Japanese respondents and 33.9% in the Danish respondents. The percentage of the positive reaction of "I felt grateful that this child was born despite disability" was markedly low at 5.7% in the Japanese respondents compared with 57.9% in the Danish respondents. As a result, "the period until acceptance of the disability" was longer in Japan than in Denmark. The following were important results related to these findings. Cross comparison of "the manner of the person who informed of the disability" and "the period until acceptance of the disability" based on the results of the survey in Japan showed that the period until acceptance of the disability tended to be shorter in those who were satisfied with the manner of notification than in those who were dissatisfied (p<0.001). No significant difference was observed in Denmark because of the smallness of the sample size. The surveys revealed marked differences in the concept of handicapped individuals. To the questions "Do you ever feel that society is cold?", "Have you ever felt inadequate in your life with others?", and "Do you think the society is prejudiced against people with developmental disabilities?", 70-80% of the Japanese respondents, in contrast to less than 10% of the Danish respondents, gave affirmative answers. In addition to these differences in the circumstances between the two countries, the survey suggested the importance of how disabilities should be notified.
- 近畿大学の論文