Preference of middle-aged Japanese regarding place to receive end-of-life care: a case study of parents of nursing students

概要

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Objectives: This study was performed to assess the preference of middle-aged Japanese regarding end-of-life care. 　Methods: A structured, self-administered questionnaire survey regarding preference of place to receive end-of-life care was performed among parents of nursing school students by postal mail. 　Results: A total of 64 （61.5%） participants returned the questionnaire. Some of the major concerns regarding home-based end-of-life care were being a burden on their family and whether their family would accept care at home at the end of their life. The majority of the participants wanted more information regarding financial support system and availability of medical and care institutions and care support services to receive home-based end-of-life care, regardless of the extent of their pre-existing knowledge regarding end-of-life care, and participants with little or no prior knowledge of the end-of-life care were less likely to appreciate the importance of family support system. 　Conclusions: These results suggest that ignorance about end-of-life care produces a narrower range of choices and limits decision making regarding such care, even though most participants would prefer to receive end-of-life care at home.