告知と支援のよりよいあり方を考える : 出生前診断を乗り越えダウン症児を産んだ夫妻を事例として

概要

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The author interviewed to a couple who gave birth and brings up their child with Down syndrome. They had amniocentesis for advanced-age pregnancy and were diagnosed 21trisomy. Having been much worried, three weeks later, they decided to give birth to the baby. When they decided to give birth, the doctor, nurses and midwife, congratulating such a decision, backed up the couple appropriately. Their three-years-old daughter is going to day nursery near their home. She is happy, being loved by her parents, grandfather, many friends, nursery teachers and members of the self-help group. Nowadays the prenatal diagnosis is common to any industrialized nations. If a couple get to know their abnormality, they must decide to give birth or not in a short time. Therefore, they should need appropriate counseling before and after the decision. However, it is pointed out that there is little chance to dear to give birth and bring up any abnormal baby because of the lack of encouragement through counseling and the lack of care system for those who make such a decision. The experience of the couple would provide an important information for medical, co-medical and social workers.
2003-03-31